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Qualitative study on transition readiness dilemmas of adolescents with inflammatory bowel disease towards adulthood
SUN Suya, SHI Donghui, CHEN Weixian, BO Jin, LIU Xiaohong, LI Dan, HUANG Yan, CHEN Yamei
Chinese Journal of Nursing    2023, 58 (20): 2446-2451.   DOI: 10.3761/j.issn.0254-1769.2023.20.002
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Objective To understand the dilemmas experience of adolescents with inflammatory bowel disease (IBD) as they transit towards adulthood,and to provide the basis for the development of patient-centered transition nursing intervention program. Methods With the application of phenomenological research method in qualitative research and purposive sampling method,from September to December 2022,15 adolescents with IBD from the department of gastroenterology in 2 tertiary A hospitals in Shanghai for semi-structured in-depth interview,and the interview data were analyzed by Colaizzi 7-step analysis method. Results 4 themes were extracted. ①Self-coping dilemma,including difficulty in adapting to changes in the medical environment,difficulty in adapting to changes in medical roles,difficulty in coping with negative emotional distress,difficulty in meeting the special needs of daily life. ②Family support dilemma,including heavy family financial burden,excessive participation of family caregivers,and insufficient family resilience. ③Medical assistance dilemma,including limited professional assistance and limited information sharing. ④Social support dilemma,including the limited applicability and accessibility of social support,insufficient social cognition and identity. Conclusion Adolescents with IBD face multiple dilemmas as they move towards adulthood. It is suggested that nursing staff should formulate a perfect personalized transition plan,carry out transition-oriented family health education,improve the medical assistance system,further strengthen social support,and improve the level of transition readiness for the adolescents towards adults.

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Research progress on transition readiness of children with inflammatory bowel disease
SUN Suya, CHEN Yamei, LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan
Chinese Journal of Nursing    2022, 57 (2): 251-256.   DOI: 10.3761/j.issn.0254-1769.2022.02.021
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The transition period from children with inflammatory bowel disease(IBD) to adults is an important stage that affects their long-term quality of life. However,most children with IBD have a low degree of readiness during the transition period,which seriously affects the prognosis and quality of life of children. This paper reviews the research progress on the domestic and foreign status of transition readiness for children with IBD,influencing factors,defects and intervention strategies. Suggestions,shortcomings in current research and practice are put forward,aiming to carry out relevant research for our country in the future and provide references to improve the transition readiness of children with IBD to adults.

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